A little bit about an amazing little boy and how you get involved
Stanley Oscar Newman is a happy, bright and funny 4 year old from Clacton-on-Sea in Essex UK. He was born with a severe form of Congenital Muscular Dystrophy know as LMNA-CMD. On diagnosis, his parents discovered that LMNA-CMD is a progressive muscle wasting condition which has no cure or treatment. All the muscles in Stanley's body will continue to deteriorate, including his respiratory system and heart, until they give out, probably in his teenage years. Stanley's parents created 'Stanley's Heroes'- the collective name for the group of friends and family who work towards giving Stan the best life possible, whilst raising thousands of pounds for Muscular Dystrophy UK in the process. Despite the many challenges, Stanley and his family remain extremely positive, determined to make every precious moment count and enjoy their time together.
Essex Hands have joined forces with Nothing Clothing Company to raise funds to help make this happen for Stanley to give him as much quality time as possible . The idea is to create an accessible garden with hydrotherapy spa ( to keep Stanley pain free ) Stanley's family are hoping to get the hydro-spa donated through the 'Starlight' Wish Charity, but without the necessary changes to the garden, installation and set up of the spa would be impossible. By purchasing these uniquely designed products you too become part of our journey to once more change lives.